Children with sickle cell anemia disease as a challenge for educational policies in Brazil

Abstract

This work aims at presenting and discussing some of the probable political and social reasons for the educational system managers not to give priority in their agendas for the educational demands of Brazilian children and adolescents with sickle-cell anemia. The discussion was developed around the following arguments: 1) The clinical and therapeutic approaches of the disease do not help revealing its social visibility; 2) Priority of sickle-cell anemia is not properly inserted within the country’s health issues;3) The insufficient political representation of the population with sickle-cell anemia does not enable them to demand the rights due; 4) Disabilities and chronic diseases priorities are not properly evaluated by the country’s educational policies.