As implicações nos papéis ocupacionais de mães atípicas após o diagnóstico de transtorno do espectro autista de seus filhos

Abstract

Introduction: Atypical motherhood in the context of Autism Spectrum Disorder (ASD) presents unique challenges, such as the lack of adequate support networks and the scarcity of information on the subject. Mothers of children with ASD often face an overwhelming burden, which can impact their occupational roles, daily life, leisure, and family dynamics.Objective: To analyze the different types of burden experienced by mothers of children with ASD and how these affect their occupational roles, as well as to understand how the level of support required by the child influences the intensification of care within atypical motherhood.Method: This research adopted a qualitative approach with a descriptive and exploratory character. Data were collected through semi-structured individual interviews, using the Snowball Sampling method, and analyzed through Discourse Analysis. Participants included mothers of children diagnosed with ASD who are followed by the Neurological Organization Institute of Bahia.Results: A total of six mothers of children with ASD were interviewed. They reported that the experience of raising a child with autism is extremely challenging, often tiring and exhausting. The interviewed mothers reported giving up their careers, leisure activities, and employment to dedicate themselves fully to their children’s care. For the discussion, three analytical categories were established: (a) Life perspective; (b) Occupational roles; and (c) Daily life.Conclusion: It can be inferred that significant changes occur in the journey of a mother raising a child with ASD. This type of motherhood demands adaptations in daily routines and leisure, often leading to the abandonment of professional careers or jobs in order to provide exclusive care to the child. Consequently, the mother often gives up self-care and her own life to ensure comprehensive care for her child with Autism Spectrum Disorder