À espera do cuidado: caminhos na implantação da rede de cuidados à pessoa com deficiência no Espírito Santo.

Abstract

The implementation of the Care Network for People with Disabilities (RCPD) in 2012 is a milestone in the provision of comprehensive health care for this population, rescuing the principle of decentralization of care in rehabilitation to facilitate access to health care services. However, after ten years of its implementation, there are still ways to go to guarantee comprehensive care for the population with disabilities. This study aims to understand the implementation process of the RCPD in Espírito Santo and the repressed demand for access to a Specialized Rehabilitation Center (CER) in the State of Espírito Santo. The methodological design was carried out through a documentary analysis and analysis of the profile of users on the waiting list for a CER. The documents reveal that the RCPD of Espírito Santo follows national guidelines, encouraging the implementation of actions at each level of health care and qualification for new services. The state has its own initiative, territorial formative self-regulation, which demonstrates concern for the systematization of access through Primary Health Care. However, such proposals still proved to be unsatisfactory given the need to overcome historical inequities in assistance to this population within the scope of SUS. Regarding the waiting list, the population profile reveals a predominance of children in need of intellectual rehabilitation, especially with autism spectrum disorder (64%). The evidence highlights the relevance of studies on the RCPD's pent-up demand, with a view to organizing an offer consistent with needs, in addition to integrating the different points of care. Furthermore, even though there have been advances in the field of rehabilitation, barriers to access to healthcare are present in the daily lives of people with disabilities, in addition to an offer focused on specialized care and organized based on biomedical criteria.