Resumo:
Introduction: Atypical motherhood in the context of Autism Spectrum Disorder (ASD)
presents unique challenges, such as the lack of adequate support networks and the scarcity of
information on the subject. Mothers of children with ASD often face an overwhelming
burden, which can impact their occupational roles, daily life, leisure, and family
dynamics.Objective: To analyze the different types of burden experienced by mothers of
children with ASD and how these affect their occupational roles, as well as to understand
how the level of support required by the child influences the intensification of care within
atypical motherhood.Method: This research adopted a qualitative approach with a
descriptive and exploratory character. Data were collected through semi-structured individual
interviews, using the Snowball Sampling method, and analyzed through Discourse Analysis.
Participants included mothers of children diagnosed with ASD who are followed by the
Neurological Organization Institute of Bahia.Results: A total of six mothers of children with
ASD were interviewed. They reported that the experience of raising a child with autism is
extremely challenging, often tiring and exhausting. The interviewed mothers reported giving
up their careers, leisure activities, and employment to dedicate themselves fully to their
children’s care. For the discussion, three analytical categories were established: (a) Life
perspective; (b) Occupational roles; and (c) Daily life.Conclusion: It can be inferred that
significant changes occur in the journey of a mother raising a child with ASD. This type of
motherhood demands adaptations in daily routines and leisure, often leading to the
abandonment of professional careers or jobs in order to provide exclusive care to the child.
Consequently, the mother often gives up self-care and her own life to ensure comprehensive
care for her child with Autism Spectrum Disorder
